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Facing
the World with Lyme Disease
by Jentri Anders, PhD
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I
learned almost without realizing it to use my left hand instead of my
right, because my right elbow was so painful. Eventually, that became
a conscious compensation when I had to keep my right arm in a sling to
avoid bumping it or absentmindedly straightening my elbow and causing
myself pain. These are perfectly valid ways of coping with Lyme disease,
once you know you have it, but if compensating accompanies denial it can
delay both diagnosis and treatment.
What is tragic is that if you don’t have a diagnosis, you could be acting like this for years and years without knowing some part of it is biologically -based. The Lyme-fog rolls in and the tears begin to flow at the same time that the attributes that once defined you fade.
In my case, scholarship has always been one of the foundations of my self-image. Only looking at the numbers convinced me I had lost a big chunk of that. For example, 20 years ago, at the age of 39, I took the graduate record exam to re-enter grad school and finish my doctorate in anthropology. I scored in the 99.5 percentile in verbal ability, in the 55 percentile in math and logic. Ten years ago, I flunked an arithmetic test while applying for a job as a fourth-grade teacher’s aide. I failed long-division and fractions. (Why would a PhD be applying for a teacher’s aide job? Short answer--ageism, nobody’s looking for a 45 year old beginning professor.) Five years ago,while working as a reporter, I resisted attempts by my editor to make me use Spell Check. Who me? I’m the queen of spelling. Then he insisted. I did it and saw his point. For the last decade, I have made word reversals in print and while lecturing that I just could not believe I had made: semen/sperm; computer/commuter; swaztika/Star of David; conscious/cautious. When a reporter or lecturer makes a mistake like that, it is extremely public. These were humiliating experiences for me and I fought hard to retain my confidence.
Over the long course of my infection, I have been greatly hampered by my skill at using compensations, denial and rationalization to protect the images I constructed of myself. These were first as a courageous activist fighting social pathologies from the social fringe; later, as a teacher/writer/reporter doing the same. I ascribed any atypical mental or emotional behavior I might exhibit to the fallout from my atypical social behavior. I scarcely noticed subtle clues like hyperacuity, against the background of creative social chaos. If I did notice, back when I first got Lyme disease, there was no lack of possible causes: living in a tool shed with no phone or electricity; hauling water; the stress of having just been sexually harassed out of grad school (I’m both a dropout and a kickout) ; divorce; childbirth; old-fashioned birth control pills; a history of emotional problems lingering from my dysfunctional childhood. How much was explanation and how much rationalization, no one will ever know, but I do know that seeing myself as a social pioneer and having an atypical life pattern handy to explain fatigue, insomnia and back pain, in the absence of any good explanation from my doctors, kept me from “hitting bottom” psychologically for a very long time.
By the time my life moved away from children and community toward career, I was very well defended, including a steel wall of denial that anything could be wrong with my mind. So strong was my view of myself as a high achieving example of the work-ethic, that hitting bottom for me came even after hospitalization for hepatitis, getting fired for my negative attitude and living off and on in my car. It was only when I woke up one morning and could not walk for two days that I was finally forced to face the idea that I was too sick to work. Only then was I motivated to question the one negative blood test I had gotten 10 years before. Only then did I research Lyme disease as thoroughly as I had researched California’s water plan and realized how sick I was and that I needed not just a doctor but a Lyme-literate doctor. next
page - one - two - three - four - five - six -
What is tragic is that if you don’t have a diagnosis, you could be acting like this for years and years without knowing some part of it is biologically -based. The Lyme-fog rolls in and the tears begin to flow at the same time that the attributes that once defined you fade.
In my case, scholarship has always been one of the foundations of my self-image. Only looking at the numbers convinced me I had lost a big chunk of that. For example, 20 years ago, at the age of 39, I took the graduate record exam to re-enter grad school and finish my doctorate in anthropology. I scored in the 99.5 percentile in verbal ability, in the 55 percentile in math and logic. Ten years ago, I flunked an arithmetic test while applying for a job as a fourth-grade teacher’s aide. I failed long-division and fractions. (Why would a PhD be applying for a teacher’s aide job? Short answer--ageism, nobody’s looking for a 45 year old beginning professor.) Five years ago,while working as a reporter, I resisted attempts by my editor to make me use Spell Check. Who me? I’m the queen of spelling. Then he insisted. I did it and saw his point. For the last decade, I have made word reversals in print and while lecturing that I just could not believe I had made: semen/sperm; computer/commuter; swaztika/Star of David; conscious/cautious. When a reporter or lecturer makes a mistake like that, it is extremely public. These were humiliating experiences for me and I fought hard to retain my confidence.
Over the long course of my infection, I have been greatly hampered by my skill at using compensations, denial and rationalization to protect the images I constructed of myself. These were first as a courageous activist fighting social pathologies from the social fringe; later, as a teacher/writer/reporter doing the same. I ascribed any atypical mental or emotional behavior I might exhibit to the fallout from my atypical social behavior. I scarcely noticed subtle clues like hyperacuity, against the background of creative social chaos. If I did notice, back when I first got Lyme disease, there was no lack of possible causes: living in a tool shed with no phone or electricity; hauling water; the stress of having just been sexually harassed out of grad school (I’m both a dropout and a kickout) ; divorce; childbirth; old-fashioned birth control pills; a history of emotional problems lingering from my dysfunctional childhood. How much was explanation and how much rationalization, no one will ever know, but I do know that seeing myself as a social pioneer and having an atypical life pattern handy to explain fatigue, insomnia and back pain, in the absence of any good explanation from my doctors, kept me from “hitting bottom” psychologically for a very long time.
By the time my life moved away from children and community toward career, I was very well defended, including a steel wall of denial that anything could be wrong with my mind. So strong was my view of myself as a high achieving example of the work-ethic, that hitting bottom for me came even after hospitalization for hepatitis, getting fired for my negative attitude and living off and on in my car. It was only when I woke up one morning and could not walk for two days that I was finally forced to face the idea that I was too sick to work. Only then was I motivated to question the one negative blood test I had gotten 10 years before. Only then did I research Lyme disease as thoroughly as I had researched California’s water plan and realized how sick I was and that I needed not just a doctor but a Lyme-literate doctor. next
page - one - two - three - four - five - six -
Ticks carry more than just
Lyme disease! Including:
0 -Ehrlichia;
o -Bartonella;
0 -Babesia;
o -Q- Fever;
0 -Tularemia;
o -Tick-borne Encephalitis;
0 -Mycoplasma;
o -Relapsing Fever;
0 -Rocky Mountain Spotted Fever and others.
Never WAIT and SEE about a tick bite, please! Quickly and properly treated infections are less likely to progress to later stage or chronic disease.
Sometimes tick bites are
mistaken for spider bites!
Some diseases may be spread by animal bites or scratches and from mosquitoes, fleas or lice.
There is still so much to learn about Lyme disease and related infections.
Sometimes Lyme disease and related infectious diseases are undiagnosed for years, even decades!
Watch closely for symptoms after tick bites. Some never see a tick or a bulls-eye rash.
Don't ignore tick-borne disease symptoms!
If you feel sick, ask a doctor!
SYMPTOMS may include:
0 -Tick bites;
o -Fever; Flu symptoms;
0 -All kinds of Rashes;
o -Muscle; Joint; Neck Pain;
0 -Body Aches; Weakness
o -Light /Sound Sensitivity;
0 -Bells Palsy; Nerve pain;
o -Insomnia; Poor memory
0 -Headaches; Numbness;
o -Mood disorders; Confusion;
0 -Extreme Fatigue; Exhaustion
Never let tick-borne diseases progress!
Lyme and associated diseases are often MISTAKEN FOR OTHER ILLNESSES, Including:
0 -Chronic Fatigue;
o -Fibromyalgia;
0 -Hypochondria;
o -Multiple Sclerosis;
0 -Lupus;
o -Rheumatoid Arthritis;
0 -Lou Gehrig's disease (ALS);
o -Alzheimer's and
0 -Parkinson's disease
******************
Don't be fooled about ticks and their diseases.
******************
Directly affecting humankind, worldwide:
W H A T H A P P E N E D
when the U.S. Senate addressed the Centers for Disease Control regarding Lyme disease?
Consult a good doctor!
Visit ILADS, LDF, LymeNet or LDA to find a specialist in your location.
Protect your children and your family.
Learn about ticks and their many diseases.
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TICK
BYTES:
- TICKS KNOW NO BOUNDARIES -
Tick-borne diseases are spreading rapidly in many countries across the world -not only in Scandinavia, UK, Hungary, Scotland, USA, France, Germany, China, and Australia.
- ONE BIG PROBLEM WITH TESTS -
There is NO 100% accurate Lyme disease test currently available to detect infection or cure. more...
- WHERE TICKS LIVE -
Ticks can be found in and around leaf litter; grass; logs; animal fur; bird feeders; and deer, mice, squirrel, and other small animal habitats.
- HOW TO REMOVE TICKS -
There is only one right way. Promptly and properly remove ticks to avoid infection. Here's how...
- TICKS KNOW NO BOUNDARIES -
Tick-borne diseases are spreading rapidly in many countries across the world -not only in Scandinavia, UK, Hungary, Scotland, USA, France, Germany, China, and Australia.
- ONE BIG PROBLEM WITH TESTS -
There is NO 100% accurate Lyme disease test currently available to detect infection or cure. more...
- WHERE TICKS LIVE -
Ticks can be found in and around leaf litter; grass; logs; animal fur; bird feeders; and deer, mice, squirrel, and other small animal habitats.
- HOW TO REMOVE TICKS -
There is only one right way. Promptly and properly remove ticks to avoid infection. Here's how...
How
to Properly Remove A Tick
Never let tick-borne
infections progress !
Tick-borne diseases can
affect any body part,
organ, and any system
of the body.
Lyme disease and Syphilis are both caused by a type of bacteria called a spirochete.
Tick-borne diseases can KILL!
Ticks travel on mice!
ALWAYS Get Ticks Tested!
Never let tick-borne
infections progress !
Tick-borne diseases can
affect any body part,
organ, and any system
of the body.
Lyme disease and Syphilis are both caused by a type of bacteria called a spirochete.
Tick-borne diseases can KILL!
Ticks travel on mice!
ALWAYS Get Ticks Tested!
Lyme Disease Foundation
Lyme
rashes have been
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mistaken for ring worm!
Ticks
travel on birds!
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