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Editorial
on MS and Lyme
By,
Tom Grier
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As
a result of my talk in Houghton MI, many M.S. patients sought out antibiotics
either from their doctors or on their own.
As a result of several positive patient outcomes from these patients seeking out antibiotic therapy for M.S., I was informed that members of the support group wrote the M.S. society and asked them to be more supportive of better educating M.S. patients about the possibility of misdiagnosis of M.S. when patients may actually have neurological Lyme disease, and that the use of antibiotics in M.S. patients may be beneficial despite the lack of any positive Lyme test.
The result was that a few days later a representative contacted the group leader and tried to discourage any pursuit of a Lyme diagnosis. The reasons being that it distracted from the acceptance of M.S. and often required the use of experimental and potentially dangerous antibiotic regimens. The intent seemed to be to purposely discourage any direction that led to either a true cause of illness and or a successful treatment of a potentially and often debilitating illness.
M.S. is after all a chronic condition that is actually nothing more than a collection of symptoms and pathology that has no known etiology and may in fact have several initiators and causes.
My conclusion after 12 years of having dealt with M.S. and Lyme patients is that M.S. patients are willing to seek out more aggressive treatments than the medical community is willing to prescribe. I feel that the issue here is equal parts medical-legal liability issues, and a lack of understanding the microbiology by physicians of the Borrelia family of bacteria that causes Relapsing Fever and Lyme Disease.
As for organizations that collect funds for the study of M.S., I think the original altruistic benevolent intentions of the founders of these groups has long since been abandoned for the pursuit of economic security. In other words I these organizations feel that it is not profitable to find a definitive cause and cure for M.S.
I happen to disagree with this policy of avoiding spirochete research because I think Lyme is just one element that causes an M.S.-like pathology. A recognized breakthrough such as Borrelia induced lesions could be used to generate a greater interest and generate more income if handled properly by the people in charge of public relations. Lyme could be a good working model to better understand the pathology of M.S. But it requires more monies and an open mind of the medical researchers.
What has really happened is that both the medical community and the research organizations have boxed themselves in by medical liability issues, and a fear of losing research monies. Until the medical community feels it has the room and freedom to prescribe antibiotics for M.S. and that the M.S. society sees that Lyme is a potential working model for M.S. pathology, Lyme patients will be handicapped by both a lack of treatment and a lack of good research.
As for using Lyme tests to make the determination if an M.S. patient should receive antibiotics, I think there is no Lyme test short of an autopsy at this time or the near future that can detect spirochetes trapped in the central nervous system. The serology tests can detect Lyme-antibodies for a short window of opportunity, but a long established infections will for many reasons too complicated to address here will eventually result in a loss in antibody production. The infection will seek out and establish deep tissue immune sequestered sites. These infections will be chronic, longstanding and as difficult to treat as they are to detect, but that does not mean a patient should be denied the right to seek a course of therapy especially when the alternative is a lifetime of morbidity and disability.
TOM Grier
tomgrier2001@yahoo.com
As a result of several positive patient outcomes from these patients seeking out antibiotic therapy for M.S., I was informed that members of the support group wrote the M.S. society and asked them to be more supportive of better educating M.S. patients about the possibility of misdiagnosis of M.S. when patients may actually have neurological Lyme disease, and that the use of antibiotics in M.S. patients may be beneficial despite the lack of any positive Lyme test.
The result was that a few days later a representative contacted the group leader and tried to discourage any pursuit of a Lyme diagnosis. The reasons being that it distracted from the acceptance of M.S. and often required the use of experimental and potentially dangerous antibiotic regimens. The intent seemed to be to purposely discourage any direction that led to either a true cause of illness and or a successful treatment of a potentially and often debilitating illness.
M.S. is after all a chronic condition that is actually nothing more than a collection of symptoms and pathology that has no known etiology and may in fact have several initiators and causes.
My conclusion after 12 years of having dealt with M.S. and Lyme patients is that M.S. patients are willing to seek out more aggressive treatments than the medical community is willing to prescribe. I feel that the issue here is equal parts medical-legal liability issues, and a lack of understanding the microbiology by physicians of the Borrelia family of bacteria that causes Relapsing Fever and Lyme Disease.
As for organizations that collect funds for the study of M.S., I think the original altruistic benevolent intentions of the founders of these groups has long since been abandoned for the pursuit of economic security. In other words I these organizations feel that it is not profitable to find a definitive cause and cure for M.S.
I happen to disagree with this policy of avoiding spirochete research because I think Lyme is just one element that causes an M.S.-like pathology. A recognized breakthrough such as Borrelia induced lesions could be used to generate a greater interest and generate more income if handled properly by the people in charge of public relations. Lyme could be a good working model to better understand the pathology of M.S. But it requires more monies and an open mind of the medical researchers.
What has really happened is that both the medical community and the research organizations have boxed themselves in by medical liability issues, and a fear of losing research monies. Until the medical community feels it has the room and freedom to prescribe antibiotics for M.S. and that the M.S. society sees that Lyme is a potential working model for M.S. pathology, Lyme patients will be handicapped by both a lack of treatment and a lack of good research.
As for using Lyme tests to make the determination if an M.S. patient should receive antibiotics, I think there is no Lyme test short of an autopsy at this time or the near future that can detect spirochetes trapped in the central nervous system. The serology tests can detect Lyme-antibodies for a short window of opportunity, but a long established infections will for many reasons too complicated to address here will eventually result in a loss in antibody production. The infection will seek out and establish deep tissue immune sequestered sites. These infections will be chronic, longstanding and as difficult to treat as they are to detect, but that does not mean a patient should be denied the right to seek a course of therapy especially when the alternative is a lifetime of morbidity and disability.
TOM Grier
tomgrier2001@yahoo.com
Ticks carry more than just
Lyme disease! Including:
0 -Ehrlichia;
o -Bartonella;
0 -Babesia;
o -Q- Fever;
0 -Tularemia;
o -Tick-borne Encephalitis;
0 -Mycoplasma;
o -Relapsing Fever;
0 -Rocky Mountain Spotted Fever and others.
Never WAIT and SEE about a tick bite, please! Quickly and properly treated infections are less likely to progress to later stage or chronic disease.
Sometimes tick bites are
mistaken for spider bites!
Some diseases may be spread by animal bites or scratches and from mosquitoes, fleas or lice.
There is still so much to learn about Lyme disease and related infections.
Sometimes Lyme disease and related infectious diseases are undiagnosed for years, even decades!
Watch closely for symptoms after tick bites. Some never see a tick or a bulls-eye rash.
Don't ignore tick-borne disease symptoms!
If you feel sick, ask a doctor!
SYMPTOMS may include:
0 -Tick bites;
o -Fever; Flu symptoms;
0 -All kinds of Rashes;
o -Muscle; Joint; Neck Pain;
0 -Body Aches; Weakness
o -Light /Sound Sensitivity;
0 -Bells Palsy; Nerve pain;
o -Insomnia; Poor memory
0 -Headaches; Numbness;
o -Mood disorders; Confusion;
0 -Extreme Fatigue; Exhaustion
Never let tick-borne diseases progress!
Lyme and associated diseases are often MISTAKEN FOR OTHER ILLNESSES, Including:
0 -Chronic Fatigue;
o -Fibromyalgia;
0 -Hypochondria;
o -Multiple Sclerosis;
0 -Lupus;
o -Rheumatoid Arthritis;
0 -Lou Gehrig's disease (ALS);
o -Alzheimer's and
0 -Parkinson's disease
******************
Don't be fooled about ticks and their diseases.
******************
Directly affecting humankind, worldwide:
W H A T H A P P E N E D
when the U.S. Senate addressed the Centers for Disease Control regarding Lyme disease?
Consult a good doctor!
Visit ILADS, LDF, LymeNet or LDA to find a specialist in your location.
Protect your children and your family.
Learn about ticks and their many diseases.
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- TICKS KNOW NO BOUNDARIES -
Tick-borne diseases are spreading rapidly in many countries across the world -not only in Scandinavia, UK, Hungary, Scotland, USA, France, Germany, China, and Australia.
- ONE BIG PROBLEM WITH TESTS -
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- TICKS KNOW NO BOUNDARIES -
Tick-borne diseases are spreading rapidly in many countries across the world -not only in Scandinavia, UK, Hungary, Scotland, USA, France, Germany, China, and Australia.
- ONE BIG PROBLEM WITH TESTS -
There is NO 100% accurate Lyme disease test currently available to detect infection or cure. more...
- WHERE TICKS LIVE -
Ticks can be found in and around leaf litter; grass; logs; animal fur; bird feeders; and deer, mice, squirrel, and other small animal habitats.
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There is only one right way. Promptly and properly remove ticks to avoid infection. Here's how...
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Never let tick-borne
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Ticks travel on mice!
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Never let tick-borne
infections progress !
Tick-borne diseases can
affect any body part,
organ, and any system
of the body.
Lyme disease and Syphilis are both caused by a type of bacteria called a spirochete.
Tick-borne diseases can KILL!
Ticks travel on mice!
ALWAYS Get Ticks Tested!
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