August 28th, 2004
Special
Interest Articles:
• Lyme Borreliosis,
By Bela P. Bozsik, M.D.
Budapest, Hungary
• Motile Menace,
By Tom Grier,
Science Writer
WILD
News Highlights:
Lyme Borreliosis 2
Lyme Borreliosis 3
Motile Menace 4
Letters to Editor 5
Dr Stricker KTVU 6
Directors News 7
Web Site News 8
From the Directors of World International Lyme Disease Emergency Rescue
(WILDER) Network !
Special Spring
Greeting
From our Vice President
Dr Edward L McNeil:
The Spring has sprung,
The sun has riz;
I wonder where the boidies iz.
Some say the boid iz on the wing;
That’s absoid, the wing iz on the boid.
*****************************************
Special Editorials:
Lyme Borreliosis
http://www.wildernetwork.org/Bela_Bozsik.html
By Bela P. Bozsik,
M.D., Budapest, Hungary
Dear Editor,
Hoping that the following will be interesting for the Lyme society on
Wildernet, and even more that it would be interesting to read and understand
for Americans.
Dear Readers!
I am a retired physician with 9+25 years practice in microscopy and serologic
investigations, and some practice with cultivating Borrelia burgdorferi
sensu lato.
I was forced to retire, but there were people to help me follow my work
in diagnosing Lyme borreliosis and to consult with patients for their
diagnosis and treatment. The first Lyme Clinic was set up according to
my proposals and it has been running since 2002 in accordance with the
flowchart presented at the First Alternative International Symposium on
The Clinical Side of Lyme Disease as Satellite of ICLB. After completing
and introducing nearly all my intentions into the practice, I was again
forced to move away from this Lyme Clinic. Now I am working to set up
the First Lyme Center adjoining to or near a main hospital in Budapest.
It is very near to being realized. There is a plan to accept foreign patients
for investigation and treatment with our original methods and schedule
for patients from Middle Europe in the Lyme Center.
It is a great honor to present our work on Lyme borreliosis, endemic in
this region since 1984, where there are three substrains causing very
different clinical pictures of this worldwide disease. I am proud to have
a VIP section at Wildernetwork.org for this knowledge among the famous
LLMDs. Thank you very much!
I hope that the well known website of Wildernetwork.org will give the
possibility for free discussion with no prerequisites for the problems
on several aspects of Lyme borreliosis.
I met a colleague at the Second Congress in Vienna, when the study of
Lyme borreliosis had just begun in Europe. We admired each other and both
had the similar idea to investigate Lyme disease both in Los Angeles and
in Budapest in 1984. That colleague was Paul Lavoie from the US. He was
a rheumatologist from the US and I am a retired pathologist specializing
in serology from the Eastern Block.
Since that time a lot of water has flown down the Danube and my old friend
has gone away, but our ideas remained:
This story from the early times, when there were not such fiery debates, highlighted the importance of the evaluation of the laboratory results in relation to the applied method(s). It should be very interesting for all of us to know the clear-cut difference in detecting the errors of the antibody determination. There is one order of magnitude difference in the characterization of the methods in relation to the biostatistical evaluation of 50 thousand determinations with one method, and the results of other parallel investigations with different methods comparing them to the most sensitive one. Therefore, about 60 percent of the reactions with our early reagent failed to diagnose Lyme borreliosis, although there were under 2 percent false-negative and 7 percent false-positive reactions.
False-positivity is an evergreen myth in serology. All colleagues are kindly encouraged to compare their results with parallel investigations via methods of different sensitivity.
In our practice, the passive haemaglutination method after the pretest absorption procedure, fails to determine more than 60 percent of the samples compared to Enzygnost ELISA (Behring, Germany).
The primary and secondary errors of this PHA method (Diagast, France) were calculated as 1.9% and 6.33% from data of 50,000 investigations respectively. These results have shown the importance of biological/clinical interpretation for every method, which became forgotten along with the growing importance of the biostatistical evaluation.
The endemic situation in the country raises the chance for the appearance of reinfection. This practice promoted the idea to propose serology as soon as a tick-bite and/or ECM, or other initial symptoms like lymphocytoma, meningoradiculoneuritis, and acrodermatitis chronica atrophicans were revealed. – An early sero-positivity indicates more intensive treatment(s) than first infection needs. Missing this opportunity elevates the development of both Lyme borreliosis seronegativa and post-treatment chronic diseases.
It is entirely another case to definitely diagnose Lyme borreliosis in a clinical sense, but it also depends on the right evaluation. This could indicate either the treatment of the patients or only advise controlling patients with clinical and/or laboratory investigations. Although it is a very important and frequent condition, there are few serological studies after the treatment of Lyme borreliosis, especially few on recurrent Lyme borreliosis or on the patients with reinfection.
As you can see that there are several problems in the diagnosis and I also try to eliminate it, I can tell you according to my practice that new method(s) could detect Lyme borreliosis, but even the newest ones missed some part of the samples, because the antibody production is waving:
http://www.wildernetwork.org/Senate_to_CDC.html “The Committee recognizes that the current state of laboratory testing for Lyme disease is very poor. The situation has led many people to be misdiagnosed and delayed proper treatment. The vaccine clinical trial has documented that more than one third (36 percent) of the people with Lyme disease did not test positive on the most sophisticated tests available. The ramifications of this deficit in terms of unnecessary pain, suffering and cost are staggering. The Committee directs CDC to work closely with the Food and Drug Administration to develop an unequivocal test for Lyme disease. " (Public Law 107-116 Signed by President Bush 1/10/02 Depts. of Labor, Health, and Human Services, and Education and Related Agencies Appropriations Act 2002)
“The
endemic
situation in the
country raises
the chance for
the appearance
of reinfection.”
The situation in
Middle Europe is more difficult because several substrains exist. This
is happening now, but it could be recognized as far back as 1985, when
clinicians sent patients with a specific case history, signs and symptoms,
but the actual laboratory method failed to diagnose several cases as Lyme
borreliosis.
Please imagine there were people with clinically proven Lyme borreliosis
who were suffering and we could not help neither them, nor could their
physicians. Otherwise there is microscopic possibility to detect Spirochetes
since Anthonij van Leeuwenhoek discovered Spirochetes in 1683 because
Lyme Spirochetes have the same morphology.
In addition dark-field microscopy without special stains is routinely employed to detect these characteristic microorganisms. For example in the case of Treponema pallidum, dark-field microscopy of native specimens is routinely used in the early stage of syphilis since 1905. The appearance of just one organism may be sufficient to confirm its presence. If supported by clinical data, the result of the test may serve as a clue to the diagnosis or the effectiveness of the therapy prescribed.
The only problem was the artificial
products waving just like Spirochetes moved by Brownian-Zsigmondy movements.
So, DualDur® was developed in 1986 to toughen membranes of the blood
cells and was controlled since that time with several thousand blood samples.
DualDur® is a reagent, free of antibiotics and disinfectants, filled
in sterile containers used for blood sampling, this reagent offers new
opportunities besides diagnosing Lyme borreliosis:
** To monitor (the effectiveness of) the therapy
** To diagnose Lyme disease in patients who received vaccinations to prevent LD or to detect seropositivity without LD
** To determine the effectiveness of new therapeutic approaches
** To follow up patients who have already been cured of LD
** To investigate the life of Borrelia burgdorferi sensu lato in a human environment.
In the future it will be possible:
** To cultivate the infecting agent or make it available for immune cytology
** To quickly determine the in vitro antibiotic resistance of the causative agent
Concurrent PCR tests appear to be less sensitive even nowadays. If properly evaluated, it is the most sensitive of the direct tests and it is also very reliable. It provides a tool to investigate natural phenomena in a laboratory setting, which may help to gather new information regarding the pathogenesis of Lyme disease.
In the microscopy, immobile cellular bodies are always seen in the background serving as controls of the moving Spirochetes. DualDur® -treated normal or washed blood or Borrelia burgdorferi sensu lato cultures can also be used as controls. Indirect immunofluorescent assays using specific monoclonal antibodies kindly donated by Prof. Barbour and Barbara Johnson prove that the Spirochetes are identical to Borrelia burgdorferi sensu lato. They were proven by electron microscopy in the last years with both negative
staining and immuncytologic reactions.
This reagent provides conditions similar to the body, therefore the division of Spirochetes were detected several times; sometimes they were acting in pictures. You can see it in the following: [Amazing image of Bb spirochete in action may be viewed at http://www.wildernetwork.org/Bela_Bozsik.html]
The next story will be on the emerging combined antibiotic treatments developed in 1990 and used widely with success in Hungary prescribed by the members of the Therapeutic Workgroup of the Lyme Borreliosis Foundation in Hungary. According to our practice we can tell you that the following could not be proved in Middle Europe:
“Conclusion: Patients with post-treatment chronic Lyme disease who have symptoms but show no evidence of persisting Borrelia infection do not show objective evidence of cognitive impairment. Additional antibiotic therapy was not more beneficial than administering placebo. " Neurology. 2003 Jun 24;60(12):1916-22 Kaplan RF, Trevino RP, Johnson GM, Levy L, Dornbush R, Hu LT, Evans J, Weinstein A, Schmid CH, Klempner MS
[Image - Dr. W. Burgdorfer, Dr. B.P. Bozsik and colleague - may be viewed at http://www.wildernetwork.org/Bela_Bozsik.html ]
[Personal info: http://www.wildernetwork.org/Bela_Bozsik.html Office: Lyme Borreliosis Foundation Hungary Email: bpBozsik@freestart.hu ]
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pathogen able to
move about so
aptly within the
human body?”
http://www.wildernetwork.org/Motile_Menace.html
By Tom Grier, Science Writer
Ever wonder how the Lyme spirochete gets around in the human body?
This is the question that Dr. Mark Klempner, M.D. asked himself, and was able to help elucidate at the 1996 LDF Conference in Boston. The Lyme bacteria have been isolated from nearly every organ, and every tissue in the human body. Although its numbers are few, what it lacks in legions it makes up for in stealth and persistence.
Even the characteristic bulls-eye rash itself is a mystery. The bacteria can be found near the outside leading edge of the expanding red rash, far from the original entry site. This means the bacteria must be swimming through skin at the rate of several inches in a matter of a few days. Quite a feat for something only 35 microns long (less than the width of a human hair)!
Dr. Mark Klempner wondered if the bacteria contained any special enzymes that would dissolve proteins, fats, and collagen. Using sophisticated biochemical techniques, it was eventually decided that Borrelia burgdorferi had no special enzymes capable of penetrating these tissues. How then does this bacteria move about?
First of all, the Lyme spirochete is a long snake like organism that has an internal bundle of flagella that contracts like a large muscle. The contraction of the flagella causes the spirochete to twist itself and propel itself forward. The internal arrangement of the flagella actually allows it to swim faster in thicker fluids because it has something solid to push against. Just like a jumper could jump farther off of hard ground than soft mud, the spirochete swims better in tissue than blood. The pointed ends allow the bacteria to fit in between crevices and work its way through cracks.
Second, the Lyme spirochete always seems to bind to tissue tips first. This suggests some kind of receptor site. Dr. Klempner soon discovered that in addition to the tips of the bacteria binding to the different tissues, the tips were also binding a blood borne enzyme called plasminogen. When activated, plasminogen is an enzyme, which initiates several reactions to occur. It is chemotactic, meaning it helps begin the process of attracting inflammatory cells to the site of tissue damage.
“...
it has learned
to
use our own
enzymes against
us to ensure its
own survival.”
When you think of it, this is a very economic way to travel. Why pack away several extra genes and the machinery to make catabolic enzymes when the bacteria can just induce our own bodies to do the work for us!
This is an advantageous
piece of evolution for the pathogen, because it has learned to use our
own enzymes against us to ensure its own survival. Once the bacteria escapes
the blood stream where our immune system is strong, it soon finds safe
haven between the fibers of a tendon, or in the immune sequestered brain
where white blood cells are forbidden to enter.
Amazingly, it would seem that Borrelia burgdorferi has evolved ways in
which to penetrate virtually any tissue of the human body simply using
our own enzymes to break down the cellular glue holding us together. Yet
an even more amazing feat may be how the bacteria eludes our immune system
long enough to establish itself throughout the human body.
Dr. David Dorward from the NIH Rocky Mountain Laboratories, showed that
when healthy normal human B cells were placed in a culture with live Borrelia
burgdorferi, that it was only a matter of moments before the spirochetes
started to attach and penetrate the anti-body producing white blood cells.
Once inside the cell, the bacteria should be killed by a process wherein
the B-cells lysosomal enzymes dissolve the bacteria, but this does not
happen. Instead the bacteria actually thrive, and eventually destroy the
lymphocyte.
What is much more disconcerting is that using a time-lapse video camera,
the spirochete can be seen to enter the B-cell and exit a short distance
later, but when it exits it appears to be wearing the membrane of the
B-cell. The live motile bacteria then swims about unharmed in the sea
of B-cells, because by wearing the cloak of its enemy it goes undetected.
This stealth type camouflage will prevent antibodies from attaching to
it; it prevents the compliment enzymes in the blood from finding and destroying
it; and it eludes the scavenger white blood cells, such as macrophages
and killer T-cells, that normally hunt down and destroy foreign pathogens.
What this means is the bacteria seems to have evolved a sophisticated
defense mechanism to avoid our immune system. In summary, we have a highly
evolved bacteria that is highly motile, can dissolve any tissue it desires
so it can find immune privileged sites, and can camouflage itself from
our own immune system by wearing the membrane of the very cells that are
supposed to track it down and kill it.
You have heard of the wolf in sheep's clothing? Apparently in the microscopic
world of predator and prey the same tricks apply!
TOM Grier [More articles online here: http://www.wildernetwork.org/TomGrier.html]
Email: TomGrier@wildernetwork.org
Dr.
McNeil offers CDs and books online!
Order either or both online.
http://www.wildernetwork.org/DrTed_Books.html
Now you can order copies of Dr Ted's newest novel, ‘The Great Boodlam
Conspiracy’ on CD!!
And while supplies last, you can order one of the few remaining copies
of the first edition of 'Plane Reading’!
‘The Great Boodlam Conspiracy’ -
'The story is an extremely humorous one with remarkable characters and
is a spoof on 007 and on Members of Parliament and a secret society that
decides what art and literature should be 'bashed' (in their terminology).'
‘Plane Reading’, published in hardback
cover in the UK and printed in Scotland and signed by the author! - 'The
tales are set in many different locations - Russia, China, England, Italy,
India, and America - to name a few. Some are set in the distant past and
others in the future to test the imagination. It is hoped that some history
will have come alive for the reader. Yes, there is romance, murder and
mystery, science fiction and half- fiction as will be explained in one
of the stories. A touch of naughtiness has crept in showing something
of the author's own character. Enjoy!
Dr. Ted donates all proceeds from his books to Lyme disease
patients and organizations worldwide!
Letters
to the Editor
Send personal and
creative stories, comments, editorials and ideas! Write to the editor:
WILDnewsEditor@wildernetwork.org
Post it online in the public access *HOTLINE* forum: http://www.wildernetwork.org/Hotline
To: "WILDnewsEditor" <WILDnewsEditor@wildernetwork.org>
Subject: Re: Lyme and Autism
I have just retired from practice in Wilton, CT -- one of the major centers
of Lyme in the NE. The local newspaper printed a statistic -- 54% of families
in Wilton have Lyme! That's an epidemic, but it only represents those
that have been recognized and reported!
There are many people with mild
symptoms who have not even gone to the doctor, or who have been misdiagnosed
because of the poor screening procedures still recommended by the Federal
and State Agencies.
“... 54% of families in
Wilton have Lyme!
That's an epidemic...”
To: "WILDnewsEditor" <WILDnewsEditor@wildernetwork.org>
Subject: Re: S. 1527
Dear Senators,
Please support the passage of this bill for Lyme disease.
We have 5 members of our family that have Lyme disease and it took 8 years
to be diagnosed.
We have a 9-year-old grandson that almost died as an infant, and has lost
having a normal childhood to Lyme. He currently is on daily IV antibiotics.
He has severe brain involvement and struggles in school.
His mother having been very athletic all her life, has had serious heart
involvement and 2 strokes and misery one can't imagine being caused by
an insect bite. I have extremely painful joint involvement, etc. My husband
and I fortunately are covered by Medicare and our complications have cost
Medicare enormous sums of money. He alone with severe heart problems and
several procedures including a pacemaker had medical bills between $60,000---$70,000.
This has cost us a previously healthy quality of life, not to mention
medical costs well over $100,000.00.
The family dog was lost to this disease and he had never been out of the
state of Florida, which is where we all live.
Lyme Disease is ravaging a wholesome fiber of our country--those who work
outdoors and enjoy recreation outdoors. This is not a self-inflicted disease
like so many that receive so much funding. Please support the passage
of this bill.
Sincere thanks for your help. - Mrs. Ethel Swift
To: "WILDnewsEditor" <WILDnewsEditor@wildernetwork.org>
Subject: Afraid of bugs? You should be ...read on, it could save
your life
It was November 14, 1994 and the beginning of a nine year struggle for
a diagnosis and eventually for survival. Our son Joshua was born that
day after years of infertility treatments. IVF, for us was the answer
to our prayers.
Though smaller than anticipated at 6lbs 8-oz, he was perfect. Little did
we know what was to follow. It was best that we didn't. It seemed somewhat
odd that he never cried when hungry and slept or lay quietly most of the
time. What a good baby, we heard over and over. Then came the fevers,
rashes, vomiting and steady decline in activity and weight. At age one
he was diagnosed with failure to thrive, a diagnosis that carried its
own stigma. A feeding tube was placed and my husband and I were questioned
as well as scrutinized. It was considered that we might be contributing
to his illness. Lack of a diagnosis was a nightmare not to be imagined.
Why would we neglect or harm the very child we underwent costly and painful
procedures to produce. We saw seven specialists at a local children's
hospital and felt helpless and desperate.
At the same time, our beautiful 5-year-old German Shepherd became emaciated,
arthritic and lethargic. He died shortly after and the vet explained that
he had spirochetes in his stool and blood. We believed there was a connection
between the dogs illness and our sons and told every physician we saw
our concerns.
To follow were years of doctor visits, abnormal antibody tests leading
to studies of our little boys brain. He had white matter disease were
told and it could be a fatal condition called leukodystrophy. We watched
and waited. Not only until I became critically ill with nausea, Chronic
Fatigue, Severe Hypertension, Cardiac Arrhythmias, Arthritis, relentless
insomnia and confusion did the mystery begin to unravel.
Six years had passed since the birth of our son. I became increasingly
debilitated despite having been a professional athlete. I was diagnosed
with Raynauds, Fibromyalgia, Vasculitis and Rheumatoid Arthritis. Lupus
was suspected to be evolving. After ten days at the Mayo clinic, failed
vascular testing etc., I was sent home with no answers and a questionable
prognosis. A local newspaper ran an article on a firefighter, 45 years
old with a similar history. He eventually was told that he had Lou Gherig’s
disease. His wife believed there was another cause for his sudden illness
and had a new test for Lyme disease done. By the time the results were
received, her husband had died. He was positive for Lyme and died from
complications of it.
Desperate, my son and I sent blood-work and waited.
Searches on the Internet confirmed what we suspected and a phone call
from the lab informed us that we not only had Lyme disease but I also
had another tick-borne illness called Babesia, a nasty protozoan infection.
Our nine-year search for answers ended that day. The road to recovery
has been a long and winding one with as many twists and turns as the road
to discovery has had. Although my son tested positive for Lyme disease
at age 2,the test called ELISA was followed up with a Western Blot, which
failed to show the bands needed for CDC reporting. We now know that the
criteria for reporting were never meant for diagnosis. After IV Rocephin
for four weeks, my son's Lyme disease was reported to the CDC in Atlanta.
As he began to heal, he started making the antibodies he needed for the
Western Blot. We have learned many lessons, the most important being,
never give up, knowledge is survival and prayer and persistence pay off.
Never be afraid to ask the tough questions and keep searching if you don't
like the answers that you get... it could save your life one day. - Ann
Marks, RN
other bizarre type
of symptom that
you might
associate with
Lyme symptoms.”
Dr
Stricker and Dr Harvey on KTVU S. F. Bay Area TV News:
Segment 2: Mysterious Parasite
Striking Bay Area Residents
http://www.ktvu.com/video/2888865/detail.html
Partial Transcript of KTVU news
video:
"[John Fowler] ... We've learned of controversial new research pointing
to a physical cause, unexplained skin parasites.
"[John Fowler] ... Most diagnosed as delusions... Researchers say
geography seems to be a major clue. "
"[John Fowler]
Doctors say many people with [skin parasites] also test positive for Lyme
disease."
"[Dr. Stricker] This is just one other bizarre type of symptom that
you might associate with Lyme symptoms."
"[John Fowler] Dr. Stricker says some of his patients have unexplained
skin parasites."
"[John Fowler] Former NASA physician & Houston epidemiologist,
William Harvey has documented more than 500 cases, he says 94% of those
tested have Lyme disease."
"[Dr. Harvey] I think we're looking at a very big, a major problem
that's being unrecognized in humanity right now."
"[John Fowler] He says Lyme bacteria may infect millions of Americans
and in some it damages their skin's immune system in a specific way, letting
odd parasites take hold."
"[Dr. Harvey] The lab tests that we do are predictably showing certain
immune damage and it's consistent from patient to patient.."
"[John Fowler] Dr. Harvey says one parasite filament is confirmed
as the infectious yeast, candida tropicalis others seem to be algae or
mold, all common in moist areas."
"[John Fowler] Doctors say it's possible, parasitic microorganisms
are stirred up into the air." Thanks to: KTVU
WILDER Network
Incorporates
Our most recent board meeting in
March this year saw the official addition of our two newest directors
and the finalizing of our incorporation. Last year was indeed our busiest
year so far and it became necessary to officially incorporate. This means
that our board and procedures are even more formalized, we have lots more
paperwork, donations will be tax-deductible, special funds can be raised
and saved for the children and patients, research, education and more.
Wilder
Network eBay Charity Auctions!
Our first WILDER Network charity
auction at eBay ended July 1st. We offered a chance to win a special copy
of Dr Ted's limited edition novel! ‘Plane reading, Short Stories
for Air Travellers’ by, dr. Edward L. McNeil - limited first edition,
signed by the author. The auction has ended but anyone can leave a message
for us in our 'seller's feedback comments' section so folks on eBay can
get to know us better. We appreciate your support!! Our seller
ID is: wildernetwork. Keep watching wildernetwork.org
and eBay
for more auctions. Donate items or volunteer to help with eBay auctions!
Write to: volunteer@wildernetwork.org
OR donate@wildernetwork.org
OR send snail mail and donations: WILDER Network, Inc box
116 Forestville, CA 95436. Thanks!!
WILDER
Network Directors
http://www.wildernetwork.org/WILDERwho.html
Get to know us better! The beginning
of this year we had some changes to our Board of Directors.
********************************************
Tom Grier
TomGrier@wildernetwork.org
Early this year we were in need of qualified individuals to fill space
on our Board of Directors. We considered many qualified candidates, but
one of the most desirable was a member of our own Advisory Committee and
respected member of the Lyme Community, Tom Grier. WILDER Network was
and is honored and excited to welcome Tom as our Second Vice President!
Tom's expert editorial and public speaking qualities make him a most excellent
addition to our Board of Directors. We believe that his connections to
the heart of the Lyme Community and his intimate knowledge of science
and tick-borne diseases are an invaluable asset to our network.
********************************************
Paula Capasso
It is with great sadness that we report that our Risk Management Director and Treasurer, Paula Capasso resigned early this year. Paula was an invaluable part of our team and she will be deeply missed. Paula is a feisty activist in Connecticut who never stops working toward justice for people with Lyme diseases. Paula remains a member of our Advisory Committee and a dedicated supporter of WILDER Network, however her local activities and personal life require more of her now, as Connecticut and her family needs her positive energy and attention. We will always support Paula and her family and her efforts, as she is a very special human, forever dedicated to our cause. Paula, we already miss you more than you'll ever know.
“Tom's expert
editorial and public
speaking qualities
make him a most
excellent addition
to our Board of
Directors”
Dr. Chandra Swami
DrSwami@wildernetwork.org
Dr. Swami has also recently joined our Board of Directors! We are very pleased to have another doctor on board and appreciate his intricate knowledge of medicine, natural healing and tick-borne diseases. His practice in PA serves patients from all over the country who seek his expert management of their conditions. Dr. Swami is very enthusiastic about supporting WILDER Network and furthering our mission. He brings his expert knowledge and inspiration as well as his dedication to our cause. We are excited and grateful to have him on our team!
special human,
forever dedicated
to our cause”
********************************************
Jean Pollard
JP@wildernetwork.org
Jean has been an invaluable member of our Board of Directors since 2002
when WILDER Network originally expanded its board. She was our Secretary
in the beginning and since the recent reorganization of our Board of Directors;
she has taken on the responsibility of Treasurer. Her experience as accountant
for a non-profit hospital in San Lorenzo, CA; an international port and
boatyard in Alameda, CA and a catering company in Hayward, CA, more than
qualify her as an experienced Treasurer and Board member. Jean's wisdom
and enthusiasm are a blessing to us all. She has at least one daughter
and two grandchildren who are fighting the chronic form of Lyme disease
and Bartonella.
Karen Lesinsky
KRL@wildernetwork.org
Karen has been a dedicated volunteer of Lyme disease awareness activities for over a decade. Karen was originally diagnosed with MS and after a lifetime of progressive symptoms, learned that she was, in fact, infected with not only Lyme disease, but Babesiosis as well. Last Summer Karen had a terrible relapse following a flu and was hospitalized for many weeks. In rehab, she recovered most of her motor skills, as many prayed for her recovery. Several weeks later she was in attendance at the ILADS conferences with other Directors of WILDER Network and she was amazing, as always. We are certainly blessed to have her as a part of our very dedicated team and appreciate her enthusiasm, experience and hard work!
Dr. Edward L. McNeil
DrTed@wildernetwork.org
Extremely talented in medicine, art, writing, music and other worldly things, our Vice President, Dr. Ted has been on been on board since our first year. In fact, together with our President and others, he has envisioned and created WILDER Network; who we are, what we do and where we are going. It is his direction and inspiration that is the very heart of our organization. Indeed it is Dr. Ted who inspires us to grow beyond our state and national boundaries and gives us the courage and networking capability to reach out across the world to help others on every continent on Earth. He is a truly amazing man. His sincere desires and selfless efforts to assist humankind worldwide are only a part of what makes us so proud to have him as a member of our team. Dr. Ted donates all proceeds from his books to Lyme disease patients and organizations worldwide!
********************************************
Laureen Leigh
LaLeigh@wildernetwork.org
Laureen began organizing WILDER Network in the winter of 2000 after learning about the complexities of Lyme and associated diseases and the lack of patient services for individuals infected, especially children. She realized the problems were worldwide and set out, with her longtime companion, Kerstin Valentinsson of Sweden, to manifest an organization that would endeavor to assist humans all over the world with understanding and dealing with the complexities of the diseases. Her dynamic leadership, multiple talents, inexhaustible dedication and effort, and humanitarian heart and soul are priceless benefits to our mission.
Inc
(15 Jun 2004 05:01 AM)
Location: austria/europe
really a fantastic site - i like it and i'll be back... greetz from vienna and have a wonderful and creative summertime !!
(13 Jun 2004 05:43 AM)
Location: Florida USA
Today... is Fathers Day in the USA: a different date is used in the UK. My message is to point out that it is even more important to let a father know he is appreciated if that father has some disability, whether physical or mental, from any sort of disease.
So many fathers, because they have become disabled and their emotions clouded in ways to annoy their kin, are appreciated with difficulty.
However, a Fathers Day message, even in those circumstances may creep into a diseased mind with some benefit. My Best Wishes to Fathers everywhere. Dr Ted
(19 May 2004 06:48 AM)
Location: USA; Bethel CT
I am a patient of Dr. Charles Jones and because of him I am getting better from a long battle with lyme. I am 17 years old looking to help others like me that haven't yet gotten to the point of recovery. I would love to help with any research, lab works, or organizations for the cause. I just want to share my knowledge and experience to help others, like people, like Dr. Jones, have done for me. Thank you.
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Location: Coatesville, PA
Hi guys! I originally contracted lyme in 2001, by the time they figured it out. I had belle's palsy and heartblock. I was treated with IV rocephin for 5 weeks and was ok until around thanksgiving '03 when I started getting a bunch of neuro problems. Whether it's a re-lapse or a reinfection, I have lyme again (or still have it) and am seeing a lyme-literate doc and on the road to recovery.
Hopefully for good this time! So thanks to all you guys, Dr. Ted and others because I know there's alot of misinformation about lyme disease. I had one Infectious disease doctor tell me I couldn't be reinfected. You guys get my support for your efforts in educating people on the reality of lyme, rather than wishful thinking or what people would like to believe. Anyway, I'm sure this is long enough as is!
You guys are awesome! God Bless
(31 Mar 2004 02:03 PM)
Location: UK
I have received wonderful support from members of this website.
These kinds of sites keep us TBD sufferers sane when everything around is crumbling! Thank you to Dr Ted for telling me about the site.
Love & best wishes to all. X
(20 Apr 2004 10:58 AM)
Location: Paradise, CA. USA
We are blessed to have Dr. Stricker as our children’s lyme specialist and also my husbands.
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